Feb 042012
 
The Fall of Winter © 2012 Jane Waterman

The Fall of Winter © 2012 Jane Waterman

I seem to have my sleep cycles back to front at the moment, but to be honest, I’m just trying to get through the days.

Today was a startling spring day in the Cowichan Valley. I say startling because when I came into the office in mid-morning, the light was blaring through the window. Most of my pictures were overexposed.

I used to be in touch with the ocean climate and the various atmosphere-ocean oscillations that governed freaks of nature like today. I lost touch with that world because it hurt too much to recall my self-perceived failure in the academic arena. Over time, I notice that attitude softening in myself, and the desire to look again into a world that once fascinated me returning.

Desires aside, it is not yet possible to bargain with the days to find enough energy to do so. Once again, it’s time to rest.

Blessings,

Jane

Feb 022012
 
Storm on Jupiter © 2012 Jane Waterman

Storm on Jupiter © 2012 Jane Waterman

I’m far away from my first career as a physicist, but not so far that I didn’t learn a few things. In particular, when preoccupied with the search for a theory of everything and being foiled yet again, physicists discover there’s always another level of complexity that they hadn’t considered. So when someone presents a theory of depression in absolute terms, I have to take a pause, consider my fellow physicists, and realize that medical doctors are as prone to the search for an elegant theory as anyone.

The problem I have with theories is this. If you search long and hard enough,  you’ll find exceptions to the rules. Sometimes, you don’t have to search that hard.

I’m told that we have to remove the idea of “chemical imbalance” from a theory of depression. It makes me wonder why then, that the side effects of some drugs – not necessarily psychoactive ones – have such dramatic effects on the brain. Something tells me there is a complex chain of cause and effect, a cascade that trickles all the way up to the brain.

When I went on Prednisone for a vicious case of  pneumonia associated with my Sjogren’s, in a few days I descended rapidly into a suicidal depression. Likewise, when taking Plaquenil for the same syndrome, I experienced a significant mood disturbance that likewise resulted in deep depression, and as a result I could only take half of the recommended therapeutic dose. I eventually realized that any benefit from the drug was outweighed by the mood disorder. So it disturbs me that if we are to throw out a chemical theory of the brain, why do these drugs have such significant effects on mood? And if there are drugs that have harmful effects, why can’t there be drugs that have beneficial effects?

I know there are. I have experienced them, and been saved by them. If we dismiss these effects as a placebo effect, we do a great disservice to the many individuals these medicines help. To reduce depression to a purely cognitive exercise might seem elegant, but it doesn’t work. In this model, the brain is treated like a train set: we need only lay in new cognitive pathways and switch off the old ones, and the sufferer is cured. Depending on how long the person has been suffering, surely these “dysfunctional” pathways become more like superhighways?

It’s always been a source of shame that I suffered from depression, and on those rare occasions I dared to speak out, reactions from other people gave me more reason to feel ashamed. I’ve worked so hard over the years to eradicate depression*, and yet the assertion that I could resolve this in a matter of weeks with cognitive written exercises makes me stumble, and think: have I tried hard enough? Did I rely on the meds too much? Did I fail because I was morally, spiritually, physically or mentally weak?

After 23 years of dealing with it, I conclude that the answer is emphatically no! I’ve been to the doorways of hell with this illness and yet I’ve travelled so far, and maintained a deep core of love and compassion for humanity, no matter that for so many years I was a virtual leper. I’ve learned that there is no grand theory of everything, especially depression. It’s a complex disease, and it responds best to a range of therapeutic options, which includes in some cases, antidepressants. In my experience, there are so many tools for dealing with depression, and pharmaceuticals are just one item in our toolbox.

I would be the first to agree that if we don’t explore the historical roots of our disease, we only prolong the work that each person must eventually do on themselves. Sometimes, however, antidepressants are a lifeline that help us swim to shore and take stock of how we ended up in the deep water in the first place. Without this, much less, without the support of medical professionals, family and friends, we may find ourselves so many years later as I have, still struggling to shut down those superhighways.

It is vital for people with depression to regard themselves with love and compassion – the tools that I have discovered over the last two years to promise a more permanent recovery and a fuller life. While people living with depression must take responsibility for their healing, let’s not throw away a valuable tool for the sake of a theory. Let’s consider instead that the more tools we have in our possession, the better, and that a treatment modality that doesn’t work for one, may save the life of another.

Blessings,
Jane

*Things I’ve tried for depression over the years, some with greater or lesser success: pharmaceuticals, talk therapy, group therapy, cognitive behavioural therapy, self-help books, Vitamin B6, St John’s Wort, 5-HTTP, nutrition, circuit training, bike riding, yoga, meditation, aromatherapy, massage, accupuncture, homeopathy, and more.

Day 28 of … No Art Today

 Posted by Jane at 11:20 pm  No Responses »
Jan 282012
 

No art or photo today, which feels quite strange. I’ve been getting used to creating something, but alas work has taken what energy I have at the moment.

Meditation was beautiful this morning. I have been cultivating the feeling of ‘no-thing’ quite successfully lately, but today I experienced quite a bit. My body, which usually feels quite numb and disconnected was tingling, in that way a hand or foot does when it’s ‘fallen asleep’ and starts to wake up. When our teacher did a body scan, this tingling feeling was following her words from head, to neck to shoulders. I was also seeing quite brilliant colours in my mind’s eye, so I observed those too.

It should perhaps not be too surprising when I learned later that my mediation partner and soulmate was divesting herself of extra Kundalini energy and it happened to be flowing in my direction! My cynical mind may be dismissive of ethereal things like energy fields, but I was definitely feeling all of these things this morning.

I was quite exhausted later, but I think it was the rush of feeling, and of course, the long working hours of late (long for someone who has limited reserves anyway).

We took the puppers for a walk in the crisp night air. It was lovely, but I think they were feeling the tiredness and pain levels too – they seemed very slow and ponderous in their nocturnal scent excursions.

I’m quite glad to be heading for rest now.

May all beings experience ease and wellbeing. And happiness – that too.

Blessings,

Jane

Day 25 of … This Life

 Posted by Jane at 10:57 pm  No Responses »
Jan 262012
 

Yesterday morning I felt grounded. I observed that I had moved to give up my fear of falling. I had taken a step toward mastering the shifting ground of my past.

By the evening, the world had fallen down. Pain and self-doubt arose – the nagging fear that something was creeping up on me from that aforesaid past.

In truth, I said what I felt. I meant what I thought. I used my voice.

I worked during the night. I was pleased with the work I got done. Today I paid for it, and the sleep deprivation gave me the worst nightmare I’ve ever had in my life.

Life with an autoimmune disease is a constant game of give and take back.

Yesterday morning I observed that I was okay with the impermanence of the experience of life. That I had begun to appreciate the Buddhist concept of suffering caused by grasping and aversion.

Tonight, I still stand by that. The pain of the day has faded to manageable levels. I sat for a while this evening and created. All is good in my world.

No matter what we go through in this life, this too, shall pass.

Blessings,

Jane

Day 23 of … Balance

 Posted by Jane at 11:59 pm  1 Response »
Jan 232012
 
Balance © 2012 Jane Waterman

Balance © 2012 Jane Waterman

I sit around making pictures at 2am in the morning because I’m no good with balance. I’m okay with that, sort of. When you work around an autoimmune disease, and work around the stuff that is as deeply entrenched in the mind as the body, I suppose anything feels like an achievement some days.

This morning, due to pushing myself too much, I was pretty shaky. In fact, I had to meet the challenge lying down. I started my day later, accelerated, trying to remember to cram eating, taking meds, working and finding my cell phone into an hour or two.

I then took an hour off to listen to a webinar on photography. Amazing how afterwards I felt an inordinate amount of guilt because I’d been “slacking off” while the “normal” work world is ticking over. I’m sure even the normal people would have grabbed the chance, if not for a webinar, for some other guilty pleasure.

I’ve been thinking about balance a lot lately, and how much I want it (so taking an hour for me doesn’t seem like a reason for guilt) and yet how reaching for it is exhausting.

Some days you just have to take life as it is, messy, arms flailing, and be happy that you got to squeeze any of these things in, much less sit down at the end of the day to write about it.

I guess balance is what happens when you let life slosh around in some kind of ungainly rhythm.

Blessings,
Jane

Jan 202012
 
Drowned World © 2012 Jane Waterman

Drowned World © 2012 Jane Waterman

Today was a tough day… one of those days when the energy is just not there. I had a bad night with little sleep, which didn’t help. Then I got up and did some work in the morning, but headed back to bed after and slept until 3pm. The pain wasn’t acute today, but it was that damned persistent ache in my kidney. I got depressed. In retrospect, I’m lucky I’ve come so far that I can go so often without focussing on that ever-present pain. It never goes away, but varies between a 3 to 8 out of 10. I have a couple of 9 or 10 times, but luckily they don’t seem to stay more than a few hours. I know I slept through some of the pain today, but I don’t feel like I totally dissociated from it. It’s a small victory, but it is one.

I hate waking up so late. It is so against the work ethic my parents instilled in me, and one I’ve lived by for so many years until the last year or so. I actually now let myself go to bed sometimes on days like this, when my body is drained elementally. It’s a double-edged sword though. In my undergrad days, I’d usually be in bed by 9 or 10pm, getting up at 4am or thereabouts to help Mum walk the dog, bake in the shop, do my homework, whatever. It seemed so easy. Now, while I can still get up at those times, it’s usually a couple of hours before I have to collapse again. The best part of the day is the night, the twilight before dawn. When everything is cold and crisp, and stars are the only illumination. I think of how we used to walk with Mum on the clifftops at 4am with this goofy great dane we couldn’t take out any other time. We were house-sitting, and the dog came with the house.

Mum and I looked for the return of Halley’s comet; we saw satellites, we saw the Southern Cross and the two pointers, and a range of constellations dancing around the southern celestial pole. I haven’t seen many of those constellations for 12 years, with the exception of a phone app that shows sky maps. Sometimes I point it in the direction of the Southern Cross and remember when I first became aware of it at 10 years old, out stargazing with my much-loved brother.

Today the rain came. It began to melt the snow. I know I can’t wish for more – I couldn’t live in the prairies with that ever present cold. Maybe it’s a moot point, when I go out so seldom. I don’t have to shovel snow often. The snow felt just right to me. A little bit of magic over the slumbering garden. I couldn’t ask for more.

Mae watched the rain run over the drowned world, and in a trick of light, it looks like one of the little juncos is trapped in the lantern we fill with seed. The rain washed away and all is well – the bird is not trapped. Mae loves the birds and the wild things, like her mother. One day I’ll write a book about how they see things. When I read Opal Whitely’s works, it reminds me so often of my friend Maire, and her daughter, Mae.

I feel a little sadness though, as the drowned world washes away. I was weak and laid down again. I dreamed a little, of some utopian world where I belonged to a group of drifters. We escaped on bicycles we’d put together. I awoke to on my pillow again, hearing water dripping from the leaking gutter, snow overflowing like a waterfall.

I took my blue mood and brought it to the computer to paint this picture. The act of creating and writing is helpful. I still feel the sadness. I feel like I can even cry a bit, which is a release.

I suppose sometimes we need a drowned world to realize when we are submerged and have to come up for air.

Blessings,

Jane

Day 16 of … First Snow

 Posted by Jane at 9:09 pm  2 Responses »
Jan 162012
 
First Snow © 2012 Jane Waterman

First Snow © 2012 Jane Waterman

Lately, I am happiest in those moments I spend outside. There is something about the chill air that shocks my system, pulls oxygen into my brain and makes me feel glad to be alive. There may be a scientific basis for this. At the moment, however, it is an observation. It’s also an observation that when I’m not doing this, I’m generally less joyful. I’ve known I’ve always suffered cabin fever, but this new awareness really brings it into focus. Maybe that’s why I hate the summer so much. With all that sun and UV radiation, I can’t get out of doors, and the feeling of being trapped is worse. Of course, I can’t escape the irony as a youth I spent so much time in the sun and sea back in Australia.

When I looked out earlier and saw the first snow of the winter falling, I couldn’t wait to get out there, to feel those big fluffy flakes falling on me. I felt like a child might in seeing snow for the first time – it was something my inner child never witnessed so many years ago, and there was the sense of a door opening and something playful emerging. That sense didn’t last, but it gave me something to hope for, that I could feel that way again – playful and not so worn down.

Ever since my walking meditation of the other day, and some remarks I made in meditation the other day, I see my soul is really crying out for more time out there – not with people, as some might assume – I really am set in my introvert ways. I just wanted to be out there, watching the birds, walking, feeling the kind of calm that comes from my meditations. I think of Clare again, and her labyrinth, and wonder if I could somehow make that come into reality in my space. I know that others might cynically remark on the treasures our dogs leave in the yard, but I’m always cleaning up after them. I’ve done mindful poop-picking before, and could do it again.

I’m aware of limitations, and of the pain the cold might bring me, but perhaps in small doses, I could eke out my outdoor time. I want to feel more of that joy, that child’s heart. It seems so far away inside me, beneath so many layers.

In this inner space, therefore, I commit to making a labyrinth – even if it’s just shaking chalk dust on the ground, I will figure it out before the sun arrives.

Blessings,

Jane

Day 7 of … Movement

 Posted by Jane at 11:59 pm  No Responses »
Jan 072012
 
Eternity © 2012 Jane Waterman

Eternity © 2012 Jane Waterman

Movement comes in many forms. Some are apparent on the surface, and others buried in the subconscious. I think I experienced some of both today.

I try to think of the words to share what I experienced, but I think I’m still processing.

Part of my resolution to allow more movement into my life meant for the most part, leaving behind the cane or walking sticks I have used for some 6 years. I think this support (or crutch as I sometimes cruelly called it to torment myself) had several purposes, but most of those are made redundant by recent movements in my subconscious.

Perhaps the most important reason for a walking aid, was to indicate my fragility to a world that could see nothing wrong with me. Whether on days that are “okay” or on days that I suffer greatly, on the outside I look the same – in fact, I seem to appear better on the days when things are worst. This is perhaps my automatic drive, like an injured bird, to hide an injury or illness to prevent becoming prey to a predator. I see the inherent contradiction between this subconscious drive, and outward appearance, but for a long time it was unknown to me.

Another key reason was an emotional crutch. A fear of falling that really had as much to do with my psychological fear than the reality. In 1996, shortly after my divorce, and death of my father, I fell headlong and broke my arm running for a train (perhaps ironically to meet my ex). The break took 3 months to heal… 3 months of my 30th year carrying a heavy arm in a tight sling around my neck. From that time on, I began to approach situations tenderly where I might stumble and fall. Many years later, I had my first attack of vertigo, crossing a city street. After several scary seconds, I got to the other side. The vertigo, which might have been a symptom of the Sjogren’s, or even some opportunistic infection, only reinforced a childish uncertainty of a “grounded” world.

I do believe it was my withdrawal from a PhD on disability in 2005 that secured the need for this crutch. I felt psychologically broken, and I suppose subconsciously I needed to reflect this brokenness. Many’s the time since then that I’ve felt weak, dizzy and disoriented by the world, that I’ve needed the support of my stick. Some 6 or so years later, I realize that my psyche needed the support perhaps more than my physical self did.

However, I’ve realized now that I no longer need to be afraid of falling. Perhaps one day I will fall, and fall again, and perhaps I will get hurt. Or perhaps I won’t. The stick has been an insurance policy, that has at last run out. I need to stop being afraid of falling. I need to stop being afraid that people will hurt me, without the physical signs of my (physical and psychical) infirmity. The last couple of weeks I have begun doing things without taking the stick – walking the dog, yoga class, and today, I did a vigorous movement class (and yes, that did scare and perplex me – I did feel dizzy several times, and needed to contact the wall to be sure my world was the right way up). It is scary, but it is also a reclamation of myself – the younger self before the several falls that damaged me.

I spent a lot of time with people today, arm to arm, in settings of grief and joy. I felt, I experienced, and I moved. I felt great love from and for people who have been in my life for some time – people who I felt could surely not love me. How wrong could I be! I met other people today for the first time, and realized the possibilities for greater connection and engagement with the world.

Movement reveals our fears and vulnerabilities. Silence and seclusion offers protection for the sensitive soul, but can protect us from life.

I realize that this latest step on our journey, however made with trepidation, is an embarkation on the path of the middle way.

Blessings,
Jane

Jan 052012
 
Walking Meditation © 2012 Jane Waterman

Walking Meditation © 2012 Jane Waterman

I’ve long known intuitively that walking in nature heals me.

I woke late after a morning nap today (on occasion, my body demands further rest after rising, and I’ve learned to listen). I decided to go into the back yard to clean up after our beagles. This is not a particularly fun job, but I’ve discovered that due to my reduced sense of smell – part of my experience of Sjogren’s syndrome – it’s not too awful either.

Recently, I’ve had to start cleaning up the front yard as well. A neighbouring dog has decided he liked our “bit o’ earth” and has recently made it his as well. I was pleasantly surprised to discover there were no new messes to clean up since last week. So I then headed to the back yard, after stopping for a sweatshirt to fight off the January chill.

As I walked, I became aware of everything around me, and my part in it. My kidney, still cold and aching, and my abdomen still hurting as it did last night. After a dream of being captain of a huge ocean liner, and walking the decks, and fighting off attackers with delicate swords that seemed too easily bent (like foil, rather than the tempered metal of yesterday), it didn’t seem fair that I seemed to have come out the worse. The place on my right side, just under my ribs, tender from the emotional pains I’d experienced starting in 2010, was stabbing as well. I observed the pain, and looked further around.

The early January sky was a translucent blue. The sun reminded me of a cold star, rather than the orb of heat that blasts my sensitive immune system in the summer. I imagined, as I often do in dreams, that I am walking in a very special place, under some foreign sky – perhaps that on another world. The starlings make their darling chirps and chatter, that I find so earthy and musical. I know that some people don’t like their song – indeed, don’t consider it a song – but I do. They are flying between the thin dark branches spidering into the blue, touched by thin, almost tangible rays of my distant star.

As I walk, I follow a path, pausing now and then in my task, but turning as I follow a walking meditation. My breath slows and deepens like last night. I feel the experience of pain receding. In my mind, I am walking the labyrinth I have always longed to walk, but haven’t, since Clare – who introduced me to a love of the labyrinth – left us on a January day so many years ago. It seems fitting then, on this crisp day, that I think of her, and see the lines of the labyrinth unfolding beneath me. It takes a long time, only because I have left the concept of time and am enjoying my stroll. It is only as I begin to clean up, amidst the chatter of starlings, that I return to the normal flow of time.

My task takes me back to the front yard, to put the garbage bin out for tomorrow. Then, on the way back, I nearly slip at the base of the steps, just as I silently feel pride in my practice in impermanence. I look down at the dark brown smear under my shoe, and the dismay dissipates quickly. I smile. I take my shoes off and walk to the back yard again, to rinse the mess off.

When I go back to the front yard to clean up so other travellers don’t meet the same misfortune, I discover that the smear of brown was in fact mud, shifted by the torrential rains of last night. I smile again at my assumptions. I then get a shovel, and chip away at the mud and clods of grass, breaking it back down to the conglomerate of the sidewalk. It’s hard work, and I’m feeling the cold and pain again, but I still feel good.

As I finish up, a raven comes down near me, and starts pecking at the garbage bag I’ve left there, ready to put into the bin. I call out to him not to be cheeky, as I put the bag inside. The ravens in the nearby branches are watching me, as they are watched by the distant star, and are none too pleased with me.

Finally, as I return to the house, I find another little parcel of brown near the front door, where a neighbouring cat has taken up residence often on our front mat, his matted white and grey fur tangled in the rushes. I look a little closer. It could be… It also could be a little cocoon, embalming some mysterious spider from this alien winter. I prefer that explanation, as I tip the little cocoon into the garden.

Sometimes, it’s not wise to pry too much into nature’s mysteries.

Blessings,

Jane

P.S. In writing this, I’m strongly reminded of the adventures of a beautiful and mysterious young girl, Opal Whitely. Perhaps sometime, you would like to read her adventures too!

Day 1 of …

 Posted by Jane at 8:58 pm  2 Responses »
Jan 012012
 

Some years ago, I gave up the folly of making New Year’s Resolutions. It seemed artificial to make a big deal about what was in actuality just another day.

However, isn’t that all they are? Each day is just another day, pregnant with hope that we will find the strength of change within us – for that’s the only place that lasting change comes from. We can hold hopes and desires that someone Beloved will protect us from the chasms and labyrinths of our own minds and hearts. Who doesn’t love being wrapped in love and settled into a safe place to hibernate through the storms?

Sometimes though, we grow up and realize we have to weather the storms, with our Beloved close – no doubt, but the decision to live, to make a change has to be of our own making. It’s a decision I’ve made so many times over the years.

I wrote recently of the loss of someone else’s Beloved. It brings up so many feelings and fears for me – ones that cannot be remedied by prayer or seeking solace in the arms and kind words of my own Beloved, and much Beloved friends. There are fears of facing this life all alone, and then fears of facing this life in love’s company and still feeling all alone.

I find myself battling old fears, old voices that this suffering will never change. That all the work I did, or thought I did, was not enough to save me. Still I drown in feelings of my own making, pain of my own making – but no, I can’t afford to heap blame upon myself at this juncture. This pain just is. The thoughts of going to sleep, hibernating through another year of potential feelings and pain. Through reaching and struggling and never feeling I have quite made it.

I promised myself that I would commit to writing something here every day of this  year, 365 days of excavating feelings and the root pains of my soul. Is it any surprise the thought of doing that fills me with fear and the desire to just go to sleep, to never wake and never have to deal with the difficulty of living.

I know, however, this is something I cannot do. I can only remind myself that things have been better in the past, and will be better again. So I take steps for protection. Adjust medications accordingly, plan for a visit to my counsellor, who I have missed so much, promise myself kindness and rest, and to just deal with each moment as it comes. Such is all any being should aim to do.

Since February of 2011 I have dealt with an ongoing pain in my right kidney. This is different to other pains I have had that are no doubt clear manifestations of the mind-body connection – the pain reflecting the travails of the mind. Yet all the scans have shown nothing, and the prognosis is perhaps tiny kidney stones that can’t be resolved. But after this recent loss of my friend’s Beloved, I no longer trust doctors. I have taken some of the steps to remedy this pain, drinking more water, and yet the pain has not resolved. It waxes and wanes, but never leaves. I no longer can be sure what is real and what is not. Is it Sjogren’s, or is it psychosomatic? Why are there traces of blood? Does it matter? I find the search for the meaning of the pain less important than the prayer for its cessation. And is it any real coincidence that I’ve been told in traditional Chinese medicine, the kidney is the seat of emotions, or the seat of fear, both interchangable in meaning for me?

Perhaps my only cure is to write my way to the source of this pain. I’ll go digging through the garden of my mind, and find the things buried there, feelings and hurts, the things I am supposed to forget, but can’t seem to. As I learn to “weed” the secret garden of my mind, I’ll continue to learn what skills I can of self-love, self-compassion, of being present here, now, with the pain – alone – and with those I love: the Beloved, the wise counsellor, the friends – the teachers that surround me.

Only there lies hope, only there lies the broken path to the future, to the grove in which I need to sit still, and not chase time, but let time come visit me.

All these moving moments, come weave around me, and let me sit still and learn to feel.

Blessings,

Jane

© 2011 Jane Waterman, all rights reserved. Suffusion theme by Sayontan Sinha