Big Picture

It’s with a feeling of quiet achievement and sadness that I continue putting my Patreon and my website together. The achievement feels quiet because everything takes longer. Sometimes, it feels like I’m writing and developing the website through a sheet of nearly opaque glass. The sadness is about the time that passed to get me […]

Expectations

Become a patron to see this content! Your support helps give me a platform, a voice, and independence. Please visit my Patreon page to learn more. I use a “pay-what-you-can” model, so you can become a patron starting at $2 a month. Thank you!To view this content, you must be a member of Jane’s Patreon […]

Objective Fatigue Scale

Hello Dear Ones, To those of you who deal with fatigue on an ongoing basis, the phrase objective fatigue scale might create cognitive dissonance. I get it. However, when I talk to Carmen (my dear wife) about how tired I feel, I throw about numbers like 2 or 3 out of 10, but I really […]

Sanity

Become a patron to see this content! Your support helps give me a platform, a voice, and independence. Please visit my Patreon page to learn more. I use a “pay-what-you-can” model, so you can become a patron starting at $2 a month. Thank you!To view this content, you must be a member of Jane’s Patreon […]

Alienation

Become a patron to see this content! Your support helps give me a platform, a voice, and independence. Please visit my Patreon page to learn more. I use a “pay-what-you-can” model, so you can become a patron starting at $2 a month. Thank you!To view this content, you must be a member of Jane’s Patreon […]

Feeling Powerless

Hello Dear Ones, There’s nothing worse than feeling powerless. Obviously — at least to those who are chronically ill — this is the cornerstone of our problems, greater than any pain or symptom our body/mind can throw up. It’s the reason I started this Patreon – to reclaim my power. So it’s annoying my first […]