Blog

Big picture

It’s with a feeling of quiet achievement and sadness that I continue putting my Patreon and my website together. The achievement feels quiet because everything takes longer. Sometimes, it feels like I’m writing and developing the website through a sheet

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An interior life

  December 11, 2019 I wake, tired and nauseous, knowing I will have to go back to bed to get more rest. A few broken hours of sleep won’t cut it. But I come from the shower – the heat

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Objective fatigue scale

Hello Dear Ones, To those of you who deal with fatigue on an ongoing basis, the phrase objective fatigue scale might create cognitive dissonance. I get it. However, when I talk to Carmen (my dear wife) about how tired I

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Sanity

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Feeling powerless

Hello Dear Ones, There’s nothing worse than feeling powerless. Obviously — at least to those who are chronically ill — this is the cornerstone of our problems, greater than any pain or symptom our body/mind can throw up. It’s the

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