It’s with a feeling of quiet achievement and sadness that I continue putting my Patreon and my website together. The achievement feels quiet because everything takes longer. Sometimes, it feels like I’m writing and developing the website through a sheet
Sometimes, I drive myself away from the page with the expectation that my thoughts and writing “should” be profound and uplifting. I come here now to remind myself that my creative work, whether sacred or profane, is what I live
Jan 20, 2020 Here we are, twenty days into a new decade and weariness remains, settling over me and dragging my heavy bones into the earth. We enjoyed a few days of snow, then a couple of days of
December 11, 2019 I wake, tired and nauseous, knowing I will have to go back to bed to get more rest. A few broken hours of sleep won’t cut it. But I come from the shower – the heat
Hello Dear Ones, To those of you who deal with fatigue on an ongoing basis, the phrase objective fatigue scale might create cognitive dissonance. I get it. However, when I talk to Carmen (my dear wife) about how tired I
I find it so hard to trust – to trust doctors and even to trust myself. I’m not sure which of these came first. I understand that my long-term difficulties in working with doctors stem from the first four years
Hello Dear Ones, Alienation feels okay, until it isn’t. I walk in a half world: on the outside, looking in. I want to speak, to tell someone what it’s like. It seems I only get to this place when depression
Carmen drove us into the sun this evening to show me something beautiful. I’ve always found the ocean revives my soul. Although I could see the beauty this evening, I had trouble feeling it. You still have to try. I
Hello Dear Ones, There’s nothing worse than feeling powerless. Obviously — at least to those who are chronically ill — this is the cornerstone of our problems, greater than any pain or symptom our body/mind can throw up. It’s the